Archive for March 2012

Food Allergy Video: A Family Perspective (FAIUSA.org)

Wanted to share this video with you that I had run across YouTube.  Great video to explain the passion, fear and concern that comes with dealing with food allergies from the perspective of children and parents.

The video is called "Food Allergy: A Family Perspective" and was provided by Food Allergy Initiative (FAIUSA.org).  In the video, Chicago families share their experiences of living with food allergies and coping with life threatening reactions.

 

 

Here is the video with the transcript below:

Kid:  “I have an allergy”

Kid:  “I am allergic to peanuts and tree nuts”

Kid:  “I felt really sick”

Kid:  “Eggs, dairy”

Kid:  “It feels like someone is choking me.”

Kid:  “Milk, wheat”

Kid:  “I felt like I was in the water and I couldn’t breathe”

Kid:  “Rye, garlic.”

Kid:  “I felt like I was being strangled.”

Kid:  “All fish but salmon, halibut and sword fish.”

Kid:  “You can’t breathe.  It’s really hard to breathe.”

Kid:  “Um, that’s it.”

Kid:  “Like how your leg falls asleep like that is what happened to my throat and then it would start closing up.”

Man:  “He bit into the cookie and we did not think twice about it because we did not know what food allergies were at the time.  We heard of them, but vaguely, but really did not have any concept or understanding of what it really meant.”

Woman:  “At that point, I was just thinking…that I needed to be sure that she didn’t stop breathing because it was happening so fast.  And I was….really scared because we were in our own home and we had eaten food that we had eaten a number of times in the past and we believed it to be safe.”

Man:  “We would have been on that flight for four hours and it certainly does not take four hours for anaphylaxis to kick in and the worse that could happen is that they cannot breathe any more.

Woman:  “We called the doctor and he said explain to me what happened. And I told him, you know, we were at a brunch, etcetera, etcetera and I said, ‘I don’t think this is related but now he seems to be getting a cold, like he is coughing and hacking…’  And there was silence on the end of the line and he said ‘where are you?’  And I said, ‘well, we are almost home.  We are at 13th and Michigan.’  And he said, ‘I want you to listen very carefully.  And um.  He said, ‘I want you to go to the nearest hospital.  Don’t stop at any red lights.  Just beep your horn and go through.  Do you know where the nearest hospital is?’  And I said, ‘Yea.’  And so we went to Northwestern and although that is our hospital we had never been to the emergency room.

Woman:  “I play that day over in my head and I….thank God Mattie kept asking me for that cake because I think to myself, if we were five more minutes and they were up in that airplane, I don’t know”

Kid:  “If you are not prepared for an allergy, it’s not going to end up good.”

Man:  “When I was a kid, I felt like I was the only one who had an allergy.  Nowadays, it is so prevalent.”

Woman:  “Something seems wrong, when you go into schools and every single class in the school has a child with a food allergy.”

Woman:  “The difference from 8 years ago today is tremendous and I don’t think really people understand the momentum that food allergies have right now.  And if you think about where we will be in 10 years if we don’t have a cure…it’s scary.”

Man:  “A cure would be the weight of the world lifted off his shoulders.”

Kid:  “I would like just have so much more fun, if I had the cure.”

Man:  “You know with that cure, at the end of the day, doesn’t relieve you of every worry, but it would relieve us and other parents that have kids with food allergies with a huge burden.”

Woman:  “I have a lot of hope that if we get everyone together.  I am absolutely conviction that we have the power to just really change the course for our children.”

Kid:  “I could go to parties and not worry about, like what I am eating and not have to be so careful with everything.”

Man:  “To know that, we don’t have to worry.  That he doesn’t have to worry more important than us, would just be a great thing.”

Woman:  “I feel like we are just scratching the surface there are so many families to find.  And I think if we can just all act together, I feel there is absolutely no reason that we can’t cure it.  So I just want to find those families everywhere.  If we put our efforts together and make this happen.

The original video can be found on YouTube at: http://www.youtube.com/watch?v=ab6CXdf48as

I think it is worth noting that the one thing that is common in all of the above families is a sense of fear.  Fear is such a strong emotion but we need to remember to put our trust in the One above.

Deuteronomy 31:6 

Be strong and of good courage, do not fear nor be afraid of them; for the LORD your God, He is the One who goes with you. He will not leave you nor forsake you. 

 

 

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